​​ ​ Premature and Birth Defect Resources | Dmkbooks and Advocacy Resources

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This site is incomplete as I am working on adding more resources to it. If you need specific information,  Facebook message me and I will put it up as soon as I get time. 

Sincerely,

Dawn Kohler and the DMKbooks Staff.

 Disclaimer: this is simply a collection of resources. Dawn Kohler and dmkbooks do not guarantee results from any of these resources and recommend researching these resources further before you and your caregiver proceed. Dawn is not a doctor or a lawyer. 

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Resources for Caregivers of Premature Babies and Babies with Birth Defects

Types of Birth Defects and Disorders 

Congenital CMV (Cytomegalovirus) and Birth Defects

   American Pregnancy CMV resources 

Intraventricular Hemorrhage (IVH)

    American Pregnancy-IVH

Phenylketonuria

     American Pregnancy-Phenylketonuria

      PKU Clinic

Zika Virus and Pregnancy 

     American Pregnancy-Zika Virus

 

Spina Bifida Page

 

Progeria: Hutchinson- Gilford Progeria (HGPS)

     American Pregnancy-Progeria

 

Congenital Heart Defects (CHDs)

    American Pregnancy-CHDs

    CDC- Congenital Heart Defects 

 

Cleft Lips and  Cleft Palates

     American Pregnancy- Cleft Lips and Palates 

     CDC- Cleft Lip and Palate

Cerebral Palsy 

 

Autism Spectrum Disorder

 

Human  Chorionic Gonadotropin (hCG)

hCG Levels- American Pregnancy Organization

 

Turner Syndrome

Turner Syndrome- American Pregnancy  

 

Birth Defect Prevention tips-American Pregnancy 

Specific Birth Defects 

Anencephaly

    Baby is born with part of it's brain or skull missing. 

       Anencephaly- CDC

Anophthalmia / Microphthalmia

    Baby is born without one or both eyes

      Anophthalmia/Microphthalmia CDC

 

Anotia/Microtia

     Birth defects of the baby's ears

     Anotia/Microtia-CDC

 

Craniosynostosis

       Birth Defect caused by the bones in a

       baby's skull fusing too early in

       development

       CDC-Craniosynostosis 

 

Diaphragmatic Hernia

       When the baby has a hole in its   

        diaphragm. 

       CDC-Diaphragmatic Hernia 

Down Syndrome: Trisomy 21 Page

Encephalocele

    When the baby has a sack of brain matter  

     out side of its skull

    CDC- Encephalocele

Esophageal Atresia

     When the baby's esophagus doesn't

     develop properly.

      CDC- Esophageal Atresia

 

Gastroschisis

      When part of the baby's Intestines are

      outside of it's body through a hole in its

      belly button.

      CDC-Gastroschisis

Hypospadias

      Birth defect involving a baby boy's

      urethra  not located at the tip of the penis

      CDC-Hypospadias

This page is incomplete I am working on adding more resources to it. Sorry for the inconvenience. If you need specific information,  Facebook message me and I will put it up as soon as I get time. 

Sincerely,

Dawn Kohler and the DMKbooks Staff.